Update on Billy - Allergies

Billy and I took the day and went to Seattle on November 6th... first started out with an ultra-sound of his kidney. We were able to get some pictures of his kidney, so he could do a show and tell. Then we were on our way to Dr Fouser (kidney Dr). Due to last years urine test that had a trace of blood in it and 6 months ago he was very low on his blood work, he had to get his blood drawn again...he was not happy...but when the process was done, he was so proud of himself, because it was the first time that he didn't cry... and the nurse remembered him from last year when she didn't put the correct wrapping on. Billy had blood all the way down his arm when we got to the parking garage...so we went back up and she took care of him a second time. This year she got it right.

In talking to Fouser - Billy's kidney is the size of a 14 year olds...due to it compensating for the other one being gone. She explained to him his pictures and she did her normal check-up which is more thorough then the regular doctors some times. The updated report: Billy's blood work is great and urine is fine also...so, we now are on a 2 year rotation instead of every year.

Once we were done with Swedish Hospital we were on our way to Children's to see his Ear Nose and Throat doctor. She put Billy on an antibiotic nasal spray...not to add another process to our morning ritual, but after the first dose his nose was cleaner. There was no green nasty things... and he was able to breath, after a couple days I watched him sleep with his mouth closed...been a long time since that has happened. Every things going good. Feels really good to be able to find and pin-point the exact root of the problem. Now it's just fine tuning it.

Kayla on the other hand is not adjusting very well to her brother feeling better and having so much energy. We are working with her on way's to work thru it instead of just getting angry and blowing up, saying he pushed her buttons...I'm trying to get her to understand that she is still responsible for her own anger no matter what someone else does. There are days that he has the rest of the family worn out... I thought I just had a calm and relaxed boy... NOT. But it is very good to see him have fun and enjoy himself.

Update on Billy's Allergies

Been a while and a lot has been going on... I'll try and make this short...but can't guarantee. We were referred to a specialist to have Billy's adenoids taken out, because the doctor here in town would not do it due to Billy's blood condition. After talking to Mia at the Puget Sound Blood Bank and Will we decided on going to Children's Hospital...we meet with Dr Smith (ENT) and Dr Mathews (Blood Dr.).

Dr Smith had and x-ray of Billy's adenoids and determined that it's not the adenoids that's causing the problem. He has enough air way that she doesn't see that being the problem. The sinus cavities are so inflamed and not able to do there job. So...what we are doing is Nasonex along with Clariton each morning. We have been doing this for 3 weeks and we have discovered that he is not snoring at night and has slept so soundly that we have had a couple of accidents. I can work with that. His airway has improved to where he can plow his nose. The other day he told me that I wouldn't believer how much snot he got out. Will has noticed that the bags under his eyes are getting better. Just an over all better - between the removal of wheat and milk along with control over the seasonal allergies. We go back in 6 month (since the Nasonex is working) and meet with the Specialist. If it didn't work they would put him on the allergy shots (which are not cheap) and if that didn't work they would want to go in and clean his sinus cavities out. Not an option that I want to do.

He is noticing what makes him feel better and what makes him feel bad. All I have to say is a real trooper. Kayla on the other had is feeling at times all the attention that Billy is getting and she talks to us in a good voice and keeps us informed when she feels that Billy is getting to much attention. Both Will and I are trying to keep her in mind and do/spend the extra time with her or on her requests (if they are in reason). That balance thing...

Billy's Allergies

We had allergy test done on Billy. He's had 4 sinus infections since November. Turns out his allergies are high for Timothy and Johnson Grass. We have him taking Allegra to see if that helps with seasonal allergies. He was low for all the other items: Candida (I think this is sugar and yeast overgrowth), Mucor (a sugar fungus because it attacks the carbohydrates, so mold/house dung and soils), Alder, Oak, Dock/Sorrel and oh did I mention Milk, Wheat and Soy. So we are doing research and starting to change how we eat...